Patient Recruitment

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Informed Consent is fundamental and required element for Human Research Participants. Informed consent must clearly outline participation requirements, risks and benefits, and communicate that no coercion was used during participant recruitment; these elements ensure that recruited participants’ rights are protected throughout the course of the study. During the recruitment process potential participants are contacted and presented with a study relevant to them specifically. Once the participant has received the study information they can choose to participate in the study by providing their consent or they can decline participation. Any research study involving participants’ DNA and medical record data requires consent.

See: The Belmont Report

Consent Materials
Consent-Related Publications
Projects/ Studies
  • Consent for Returning Pharmacogenomics Results (Lead: Maureen Smith)


In the News

Here's what's happening with eMerge:


eMERGE is excited to share the results of the national multi-site survey it conducted to investigate public attitudes towards consent and data sharing in biobank research recently publish in AJHG.  For...


To All eRecordCounter Users, We have an upcoming scheduled maintenance window beginning Tuesday, February 21st through Sunday, February 26th. During this time, the eMERGE Record Counter application...


The 3rd International Workshop on Genome Privacy and Security (GenoPri'16) is a community effort for promoting genome privacy and security, co-sponsored by the eMERGE...


Safe travels to our eMERGE investigators as they head to Vancouver this week to participate in ASHG 2016. Click here to view a list of eMERGE-specific presentations and here for general eMERGE...