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Informed Consent is fundamental and required element for Human Research Participants. Informed consent must clearly outline participation requirements, risks and benefits, and communicate that no coercion was used during participant recruitment; these elements ensure that recruited participants’ rights are protected throughout the course of the study. During the recruitment process potential participants are contacted and presented with a study relevant to them specifically. Once the participant has received the study information they can choose to participate in the study by providing their consent or they can decline participation. Any research study involving participants’ DNA and medical record data requires consent.

See: The Belmont Report

Consent materials
Consent-related publications
Projects/ Studies
  • Consent for Returning Pharmacogenomics Results (Lead: Maureen Smith)

 

In the News

Here's what's happening with eMerge:

03
NOV

The Electronic Medical Records & Genomics (eMERGE) Network is thrilled to be represented by our investigators at the American Medical Informatics Association (AMIA) Annual Symposium, hosted November...

31
AUG

An upcoming scheduled maintenance window is starting Tuesday, September 5th and ending Wednesday, September 6th. During this time, the RD Discover, SD Discover, Subject Locator and Record Counter applications...

25
JUL

The NIH/NHGRI has published IGNITE II RFAs which are linked below for your convenience.

  • Implementing Genomics in Practice (IGNITE) II: Pragmatic Clinical Trials – Clinical Groups...

22
JUN

CMS announced last week it will award up to $30 million in grant funding to clinical specialty societies, clinical professional organizations and independent research organizations to develop quality measures...