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The Patient Education initiative seeks to create a more informed discussion between patient and provider about genetic counseling through developing MyResults.org, an informational resource equipped with knowledgeable material including in-depth drug overviews, explanatory videos, and frequently asked questions about genetic counseling, which can be used to improve critical health decisions.
Patient education-related publications
- Brothers KB, Westbrook MJ, Wright MF, Myers JA, Morrison DR, Madison JL, Pulley JM, Clayton EW. Patient Awareness and Approval for an Opt-Out Genomic Biorepository. Per Med. 2013 Jun;10(4). PMC3882901.
- McCarty CA, Garber A, Reeser JC, Fost NC; Personalized Medicine Research Project Community Advisory Group and Ethics and Security Advisory Board. Study newsletters, community and ethics advisory boards, and focus group discussions provide ongoing feedback for a large biobank. Am J Med Genet A. 2011 Apr;155A(4):737-41. PMC3092645.
- MyResults.org (Lead: John Connolly)