Frequently Asked Questions

Welcome to eMERGE’s “Frequently Asked Questions” page.

Click on each question below to expand and learn more about each topic:

What is the eMERGE Network?


What are eMERGE’s aims?


What are eMERGE’s goals?


How is eMERGE organized?


The eMERGE Network is comprised of which institutions?


What are the workgroups and their goals?


What is the difference between eMERGE I, eMERGE II, and eMERGE III?

eMERGE Phase I
Founded in September 2007 with five network sites:
* Kaiser Permanente Washington Health Research Institute/University of Washington
* Marshfield Clinic
* Mayo Clinic
* Northwestern University
* Vanderbilt University (also coordinating center)Phase I Workgroups:
* Consent and Community Consultation Workgroup – Published model consent language for EMR-linked biorepositories Intended to harmonize the consent process for the collection and storage of human biospecimens and data for future research, particularly those collections that have an EMR component.
* Genomics Workgroup – Created a unified data set of genotyped samples across all sites, and published a “how to” paper that outlined the procedures and lessons learned from combining genotype data across a research network
* Informatics Workgroup – Created and published a library of EMR-based phenotyping algorithms accrued throughout Phase I that is available to investigators outside of the eMERGE Network
In addition to previously established eMERGE sites, the network gained four new sites in 2011, two adult and two pediatric:
* Geisinger Health System
* Icahn School of Medicine at Mount Sinai
* Children’s Hospital of Philadelphia
* Cincinnati Children’s Hospital Medical Center and Boston Children’s Hospital (joint site)
New workgroups were also created based on network aims:
* EHR Integration
* Return of Results
* Consent, Education, Regulation, and Consultation (previously Consent and Community Consultation)
* Phenotyping (previously Informatics)
* Pediatrics
* Genomics (same as Phase I)
The Network gained four sites in 2015
* Columbia University
* Harvard University
* Baylor College of Medicine (CSG)
* Partners/Broad (CSG)Three sites from Phase II became non-member affiliated partners
* Marshfield CLinic/Essentia Rural Health
* Icahn School of Medicine at Mount Sinai
* Boston Children’s Hospital
New Workgroups were created based on network aims and goals
* Clinical Variant Annotation
* Outcomes


Frequently Used Terminology?


Informative Publications?


In the News

Here's what's happening with eMerge:


eMERGE is excited to share the results of the national multi-site survey it conducted to investigate public attitudes towards consent and data sharing in biobank research recently publish in AJHG.  For...


To All eRecordCounter Users, We have an upcoming scheduled maintenance window beginning Tuesday, February 21st through Sunday, February 26th. During this time, the eMERGE Record Counter application...


The 3rd International Workshop on Genome Privacy and Security (GenoPri'16) is a community effort for promoting genome privacy and security, co-sponsored by the eMERGE...


Safe travels to our eMERGE investigators as they head to Vancouver this week to participate in ASHG 2016. Click here to view a list of eMERGE-specific presentations and here for general eMERGE...